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The 9th Annual Race to Beat POTS will take place at West Goshen Community Park in West Chester, Pennsylvania, about 35 miles west of Philadelphia! This event raises funds for Dysautonomia International's POTS research, education, and awareness programs. Invite your friends and family out for a fun day at the park! Run, walk or roll a 5k or 1 mile loop during the in-person race, or just come out to show your support for the POTS community. There will be family-friendly activities, games and entertainment throughout the event. There is also a virtual registration option for those who want to participate from home, with the option to receive a t-shirt. Prizes will be awarded for team and individual categories.
RACE TO BEAT POTS LOCATION
West Goshen Community Park
1023 Fern Hill Rd
West Chester, PA 19380
REGISTRATION OPTIONS
In-Person Registration (includes T-shirt): $40
Virtual Registration (includes T-Shirt): $40
All registrations after May 15th (No T-shirt) : $40
Sponsorships: $250-$5000 (see below for details)
All registration levels include the creation of a personal fundraising page and the ability to create or join a fundraising team. We love seeing the creative team names people come up with!
THE COURSE
The race course is paved. We welcome walkers, runners, wheelchair users, and baby strollers.
RACE DAY SCHEDULE OF EVENTS
8:30 AM - 9:45 AM: Check-In at the Pavilion for Pre-Registered & Same Day Registrants and Silent Auction Opens
10:00 AM: 5K Walk/Race Kickoff-Beg, Steel and Borrow will provide live music
10:30 AM: 1 Mile Fun Run Kickoff
11:15 AM: Awards Ceremony
11:30 AM: Auction Closes and Winners Announced
We suggest you come early (anytime after 8:30 AM) to pick-up your goodie bag and t-shirt at the registration table, and to avoid any wait. If you have friends who would like to join the event who haven't registered yet, we welcome same day registrations at the event.
T-shirts can be picked up at the race registration desk on June 2, or they will be mailed to a mailing address within the continental US after the race. We are unable to ship t-shirts internationally.
PARKING & BATHROOMS
Parking is available to the North of the park off Lawrence Drive and to the South of the park off Fernhill Road. Restrooms are located in the center of the park at the pavilion.
WEATHER POLICY
The event is rain or shine, unless conditions are unsafe (lightning, heavy winds). If the event is postponed due to the weather, we will email all race registrants and post a notice on racetobeatpots.org.
AWARDS CEREMONY
The awards ceremony will be held after the race. Don’t forget about our prize category that requires no running or walking - Best "Make Noise For Turquoise" Dysautonomia Awareness Outfit! We can’t wait to see your turquoise outfits!!!
SILENT AUCTION
Stop by the silent auction area to check out all of the great items that were donated and place your bid. We will be able to take cash, card or check for silent auction payments. Winners will be announced at 1:00 PM.
REFRESHMENTS
Salty snacks and drinks will be provided, but we strongly suggest you bring a filled water bottle too.
SEATING/SHADE
There are places to sit in the sun and shade, but we encourage participants to bring lawn/camping chairs or a picnic blanket to sit on. POTSie tip: a picnic blanket is much easier than dragging a chair around a big field, plus you can lay down on a blanket.
PET POLICY
This is a public park and well-behaved dogs are allowed. Dogs must remain on leash at all times, and owners are responsible for cleaning up after their pets.
COVID-19 POLICY
Please help us protect the health of POTS patients, caregivers, volunteers and other guests. If you or someone you have been exposed to has recently had COVID-19, or you have unexplained symptoms suggestive of an infection (cough, fever, chills, etc.), please stay home. Masks are welcomed but not required for this outdoor event. The event is in a large open field, so there is plenty of space to spread out while still enjoying the festivities. If you don't feel comfortable participating in-person, we welcome you to join us virtually.
We are looking for sponsors for the 2024 Race to Beat POTS. If your business , team, or family is interested in becoming a sponsor please sign up for a sponsorship during registration or give us a call with any questions you may have, 631-202-1720. In order to have your name on featured on the event shirt, you must submit sponsorship by May 10th.
Individuals who register for the 2024 Race to Best POTS are eligible for the prizes below. Prize winners will be announced at the awards ceremony which will be held after the race, at 1:00 PM. Virtual winners will be contacted via email.
RACE PRIZES
Race medals will be awarded to 1st and 2nd place winners for males and females in the 14 and under, 15-29, 30-49 and 50+ age categories. We'll also have a prize for the best "Make Noise For Turquoise" dysautonomia awareness outfit amongst in-person registrants.
FUNDRAISING PRIZES
Most Funds Raised by an Individual
Encourage your friends and family to donate to your personal fundraising page! You'll receive fundraising credit for your registration fees and donations you make to your individual page, donations made by others to your individual page, sponsorships purchased or obtained by you, and cash/check donations made towards your individual fundraising page. The individual fundraiser that raises the most funds by 10:00 AM on June 2, 2024 will receive a Dysautonomia International Gift Pack with a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, an "Ask Me About Dysautonomia" button, and a pair of limited-edition Dysautonomia International turquoise awareness ribbon compression socks.
Most Funds Raised By A Team
Encourage your friends and family to register, join your team, and raise funds together! Teams receive fundraising credit for registration fees and donations by your team members, online donations to your team or individual fundraising pages, sponsorships obtained by your team members, and cash/check donations raised by your team members. The team that raises the most funds by 10:00 AM EDT on June 2, 2024 will receive the Team Prize Package, including a Certificate of Recognition for all registered team members presented to your Team Captain; shout out to your team on Dysautonomia International's social media channels; and a Dysautonomia International Gift Pack for the Team Captain that includes a pair of Cure POTS shoelaces, a Cure POTS tote bag, a turquoise metallic Dysautonomia International water bottle, and a pair of limited-edition Dysautonomia International turquoise awareness ribbon compression socks.
To count towards the individual or team fundraising prize, cash/check donations must be received by Dysautonomia International's main office (PO Box 596, East Moriches, NY 11940) by 5pm on May 31st, or delivered to Taylor Kulp (race organizer) at the race check in desk by 10:00 AM on race day. Be sure to include a note indicating that the donation is for your individual fundraising page or team.
Individuals/Team Captains can only win one fundraising prize. If the individual with most funds raised is also the Team Captain of the team with most funds raised, they will win the Team Prize and an alternate winner will be chosen for the individual prize.
Please note that all prizes will be presented at the race or shipped to winners in the continental US at no charge. If a winner would like a prize shipped anywhere outside of the continental US, the winner will be responsible for shipping fees. Final decisions on the winner from each category will be decided by Dysautonomia International.
Please feel free to reach out to us with any questions: 631-202-1720 or events@dysautonomiainternational.org.
POTS stands for postural orthostatic tachycardia syndrome, which is a disorder of the autonomic nervous system, a form of dysautonomia. POTS is estimated to impact over 6,000,000 Americans, and millions more around the world. Despite its prevalence, most people have never heard of POTS. Many doctors are unfamiliar with POTS, which can make getting a diagnosis and proper treatment extremely difficult.
Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of people around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy and patient support for all autonomic disorders. Dysautonomia International is also the largest non-governmental source of POTS research funding in the world!
Hi! We are Erin Harten and Taylor Kulp, co-founders of the Race to Beat POTS. After meeting at the Dysautonomia International Conference in 2015, we decided to work together to raise awareness and research funds for POTS.
We are so grateful for all the support you have shown us throughout these last eight years. With your help, we have built a community that is making a difference in the dysautonomia world. We can not thank you all enough for being on this journey with us.
We can't wait to see what our ninth year will be like! Working together, we can #CurePOTS!
- Erin & Taylor
Taylor & Erin at the 2018 Dysautonomia International Conference in Philadelphia, standing in front of the mural created by fellow patients & caregivers.
THOUGHT LEADER SPONSORS
JUNIOR SCIENTIST SPONSORS
LAB GEEK SPONSORS
THANKS FOR SUPPORTING THE RACE TO BEAT POTS!
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If you require assistance with your Race to Beat POTS personal fundraising page or team page, please reach out to Dysautonomia International at 631-202-1720 or events@dysautonomiainternational.org.